Vision Update

Since my last post about my vision, everything has been going beautifully. Wearing my contacts, my vision has been 20/20 in my right eye and 20/25 in my left eye. I wear glasses to read and do computer work. It is a miracle because my vision prior to my surgeries had been so bad. (You can read a little about my vision history by going to posts about Avastin and Vitrectomy on my my Looking For Something link.)

A couple of months ago, I noticed a loss of vision in a small area of my left eye. Immediately, I called my retina specialist. He gave me an appointment for the following day. I went in, fully expecting to begin a round of Avastin shots. At the visit, he could find nothing – no bleeds, no tears, nothing wrong. He rescheduled me to see him two months later. During those two months, the spot with loss of vision grew a tiny bit. The spot was troubling but did not affect my abilities. I expected the doctor to find something at visit #2, but he did not. He suggested that I might have had a loss of pigment in a portion of my retina, and that my brain should learn to compensate in time. He rescheduled me to see him in 6 months.

In the two weeks since my second appointment, the spot has grown substantially, covering about a third of the vision in my left eye. It has become difficult to read fine print. I have to take frequent breaks when I am working on the computer. I hesitate to call for another appointment. I don’t want to take time off from work and have him find nothing again. It seems like a waste of his time and mine. I will call, though. I know that the earlier a problem is diagnosed, the more likely it is that it can be corrected.

In the midst of my anxiety about this, I am also feeling grateful. I am so grateful for the past year of perfect vision. I have looked at everything in a new way, as if seeing it for the first time. I have enjoyed reading. I have used my eyes like a camera, imprinting pictures in my memory.

I don’t know what the future holds for my vision. I do know that, whatever may happen, I have been given this great gift of time with good vision. No matter what happens, I will continue to count my blessings.

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7 thoughts on “Vision Update

  1. Hello; I hope you have spoken with your doctor by now. None of us want to, but the longer we wait the worse it can get. I am working to get to know other blind bloggers. I hear the best way to do that is to leave a comment. and i have been invited to participate in what they call a blog hop on the writing process. I need to invite three others to participate. I was hoping to introduce the group to some other talented blind bloggers. If you are interested, I can send you the details. Its not hard. Let me know if I can do anything to help you. Take care, Max http://www.mr-midway.com

  2. Belinda, I came across your blog when I was looking for information on Avastin. I am 59 and suffering with myopic macula degeneration. I had a major bleed in late June in my left eye and started Avastin. I have been having one every month for the past seven months. I am doing a better, but my vision is still distorted. Your blog has been encouraging to me and helped me to be thankful for the vision I still have. I am very sorry to hear you are having vision loss again. I would encourage you go see your RS. I have felt like that at times but my RS said to come even if it is nothing. It is better to be safe! My prayers are with you.

    Bell

  3. Hi Belinda sorry to hear about this latest eye problem. Please don’t ever feel you are bothering your doctor. I can tell you first hand at the retina practice I work at we see emergency add-ons everyday, and for those non emergency patients an appointment is scheduled relatively soon. In my own situation when I went to one of the doctor’s I work for with my eyesight problem, all sorts of testing was done, ocular scan, focal angiogram and nothing showed up initially, my problem continued to worsen and less than a week later I was having another scan with a different size grid and the macular hole showed up. Since my own Vitrectomy my eyesight also is 20/25 in the eye I had the surgery and 20/20 in the other eye. I too have to constantly monitor the good eye because there still is macular edema in that eye. So far so good. I have a greater appreciation and understanding of the patients in our practice having gone through this myself. I hope you’re doctor can diagnose and resolve your current problem. I will keep you in my prayers.

    Nina

  4. I am sorry to hear about this blind spot that is growing in your eyes. I am all too familiar with the uncertainty of situations like this and how they impact us emotionally. You are doing well to treasure every day of good vision that you have. Nobody is promised tomorrow. Those of us who have to live with the ground shaking under our feet know this very well. I try to remember that someday this shaking ground will once again become stable. And, when that happens I will be able to choose with certainty some path. And on that path there will still be many many good things to do and experience.

    • Hi Buddy – How have things been going for you since your last surgery? I was hoping things had stabilized, but judging from what you just wrote to Belinda, I’m thinking they have not. Here’s hoping that you find your stable ground soon.
      Karen

  5. So nice to read your post, Belinda, and to see how far you’ve come with your visual acuity! Eyesight is a true gift, and I never take mine for granted either.

    Please don’t feel that you are wasting your doctor’s time with your new concerns. (But I do know that feeling too!) It’s his job to help you keep your vision as sharp as it can be. Better to stay on top of things and not let the changes progress any further. Keep us posted and have a great weekend!

    Karen

  6. Belinda, I first found your blog a little over a year ago while trying to find information about vitreomacular adhesion, and I have been enjoying your posts since then. My retina specialist thought I might be a candidate for an injection of Jetrea which had just become available in the U.S. It helped only minimally and I have a hole in the macula of my right eye. Not much I can do about it, but is not something that will get progressively worse for which I am very thankful. I wish you many blessings as you struggle with your vision problems. At my first diagnosis I was devastated. Your optimism helped put things in perspective for me. Thank you. I am so grateful for all the wonderful things in my life. Patty

    Sent from my iPad

    >

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