About

Hi and Welcome!

I am Belinda, wife of John and mother of three adult children.  I live in Rochester, NY.  I am Catholic and love my job as the Director of Youth Ministry at St. John the Evangelist Parish in Spencerport, NY.  I began writing this blog as a proactive way of dealing with vision loss.  Through miracles in both the medical and spiritual realm, I am now able to see fairly well with my physical eyes.  The process of losing and then regaining my vision has taught me to look for the beauty in everything and everyone around me.  Although I have regained my vision, I continue to write this blog because it helps me to be mindful of God’s grace all around me and because some people have commented that this blog has been helpful to them. 

Thank you for visiting.  I hope you enjoy my blog.  Please feel free to comment and add your thoughts to any posts you would like.

Peace, Belinda

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41 thoughts on “About

  1. Hi Carol…,as you have read, I had the vitrectomy for a macular hole. Now….almost a year later…all healed and just fine. As predicted, because of the vitrectomy I devloped a full blown cataract 3 months post vitrectomy. Had it removed and a lens implant in October and I can now tell you that I am perfect. The Cataract- performed with the femtosecond laser proeedure (dont even THINK ABOUT doing it the old fashioned way). This may sound nuts…but it was actually fun…painless, comfortable and you get to see a great 30 second light show! Then you go to the OR where they implant the lens. Not one scary moment. My surgery was at 8am…I was out with a patch over the eye for 18 hours at 10:15am and actually went out to lunch (and drove myself to get there!), The only downside (more of an inconvenince than anything else) were the drops. You need to have a spreadsheet to know when to put in what drop (for three weeks). Compared to what you(and I had been through with the vitrectomy) it was a NON-EVENT. No fear…it’s as easy and uncomplicated as they say. I got a single vision lens (only one eye done) and I still wear my tri-focal glasses primarily for reading. The whole world is brighter and crystal clear and sharp.I am fully able to drive WITHOUT GLASSES. Good luck…it’s an easy end to a long trail!

    • Thank you Rick! I have been so stressed that I was thinking of calling my primary doctor for anxiety meds today. I was thinking on getting a second opinion and then my dr. said he did not think I was a good candidate for multi and then I saw on internet that was not advised for history of detached retina just today so that makes the decision less complicated. So I am planning on having my left eye left for near 14 inches which I guess is -2 as I have had mono vision for years and I’m use to it. I hope its the right decision as my dr. said its better if both eyes work together like yours but he thinks I’ll do fine because I have had it for years. I hope everything goes well and I won’t have double vision. I could go distance in left eye but don’t know how that would be so I’ve decided on mono cuz I’m use to it; which is helpful for putting on make-up and checking my watch in the middle of the night. Hope I will be able to pass my driving test mid February with monovision. So I will we wearing my progressive glasses with reading correction in right and distance correction in left; but my dominant eye is pretty good 20/20 so I can drive kind of just with it.

      I am just hoping and praying my operation on Monday goes as well as yours. So thankful for your response!!!!

      I guess I don’t need to get anxiety pills. I’ll let you know how it goes. Carol

      • Sounds like you’ve made a good plan. As long as you don’t mind wearing progressive lens glasses you shouldn’t have a problem. They do a lot with the corrections. I have glasses all over the house (and in the cars). I have a pair of distance only for when I lye on the couch to watch TV (progressives don’t really work well there) and assorted tri-focals both sun and regular. Women have it easier anyway…you can use the glasses as a fashion statement! .a half mg of Xanax works wonders for the anxiety…ask you doc for a scrip. I work on a computer all day so my mid-vision is also a concern. Here’s the good news….if I got stuck anywhere without glasses…I could read in a linch and work on a computer screen and also drive…..now all without glasses. HNot the ideal situation…much better with the progressives…but at least I’ve got the backup. Don’t panic….the cataract surgery is a piece of cake after what you’ve been through.It’ll be a really easy day for you. btw…don’t think you are missing a thing with the mono lens…and you’ll save $4 grand. Take a nice cruise! Good luck!

      • Well I just talked to the dr. and told him I wanted a distance lens instead of a mono lens. Been thinking about it all day. I realize that I use glasses mainly for reading & computer and thought about whether I really needed mono as I am more ok with glasses than I was when I had lasik. Also I thought it might help with my depth perception as I do a lot of hiking. Also, since the vitrectomy I have had aniseikonia where my operated eye sees print one font a size smaller than the good right eye. Did you have that? When I was in the drs. ofc. originally he said eyes work better together, but at the time I was only thinking the choice between the restore and the mono lens cuz that’s what I’ve had since lasik in 1999.

        So hearing your happiness with driving without glasses and ok with living with progressives helped a lot. And having to get a vision test for a new license soon; I started thinking about getting the distance eye. Have to go re-sign the papers; but think this is the right decision. The dr. just asked me not to change my mind in the operating room. LOL Carol

    • Had my cataract surgery yesterday. The doctor said it went “textbook perfect” which could not of been better words to hear. A “piece of cake” as you said compared to vitrectomy as keeping the face down for 10 days, dealing with the gas bubble for 3 weeks, & then the fear the floaters would never go away was sheer torture! (I still have one tiny floater but I do not always see it and when I do I move my eye far to the side and back and can get it to go out of mid eyesight range) But with this cataract operation there is no swelling, no redness. My eye actually looks normaI. I took tylenol yesterday and last night but no pain today. I felt a little scratchyness so put in some refresh plus eye drops which I have used since lasik and that helped. I also have been taking 1 tbsp. of flaxseed oil a day which supposedly helps with dryness as well as ocuvite, one tablet a day. The cataract surgery doesn’t seem to have corrected the aniseikonia caused by detached retina & subsequent surgery, but perhaps glasses will. I am satisfied that I switched to the distance lens from the mono and am hoping my eye will see as well as yours, but won’t know for four weeks. I am glad this was done in the winter which has less bright light and shorter days. I go for my day after follow up in a couple hrs. I am curious as what my vision is today, the day after surgery and what it will be four weeks from now. All in all I am very pleased with the outcome. I know the picture is only as good as the film in the camera and my film isn’t great and I know my Dr. did the best he could given what he had to work with. I am glad to have read your story as it helped me think about having the lens set for distance, that, and the doctor’s comment that “eyes work better together.” I also liked how positive you were with your outcome. It helped me feel not so bad about not being able to have a multi-focal lens. Thank you again! Carol

      • It gets better every day. Make sure you follow the drops directions…know they are a pain in the neck but important. Bet you improved dramatically in your checkup today. I also found the brightness difficult for a few days. Got great sunglasses called Drivewise… they work like transition lenses except they are a sunglass tint and they actually work in the car (regular transition lense don’t). Told u it was a piece of cake! And…I thought you’d be pleased with the distance mono…it was the right way to go.

      • Yes, my follow up appointment had my sight at 20/30 in my operated eye. I took out the left progressive lens in my glasses and bought a pair of reading glasses at +250 to last 4 weeks until I get my final vision.

        I am very interested in all the glasses you bought. My last progressive lenses were tinted to get brown when I went outside, but not in the car. They were almost too dark when outside, but that could have been due to my trouble seeing with the cataract. I’d like to know exactly what you bought? Was it one for just distance for tv, one for just reading, one clear progressive, and one sunglass progressive being the Drivewise? Where did you buy the Drivewise? Do you have 4 pair? Please let me know.

        I took a walk outside today with the dark glasses they gave me and what a difference without the cataract; but still somewhat blurred. How long did it take for your eye to achieve its final correction?

    • Rick,
      That was so helpful!
      One last question as I know you’re busy packing for your trip. Which color tint did you choose for your Drivewise? Or do they only come in one colored tint?
      Thank you for all your help!
      Have a great vacation!!!

      • They come only in one color…it’s kind of a lightish brownish….gets more yellowish out of the sun. It’s a really cool color….many golfers use it as a “blue blocker”. Don’t know where u live but if there is a COSTCO nearby…that’s the place to go for them. They demo them in the store under UV light for you. The return policy is without a doubt the best (and probably only) one around. Worth driving to one if anywhere possible!

      • When I went on the costco website, I cannot see anything for Drivewise. What I do see are the Lenses: Kirkland Signature HD Progressive, Transitions photochronmic Lenses, Polarized Sun Lenses, Anti-reflective Treatment and Computer Lenses and then under Lens Materials: High Index, Polycarbonate Aspheric, Polycarbonate, and Hard Resin (plastic) So were you talking about Polarized Sun Glasses or Transitions Photochromic?

        I know you are very busy, but this is my only chance to ask you as you will be gone a month.

        Thank you. Carol

      • No need to apologize…glad to help. I’ve never even looked at the Costco website for glasses…the local store is so convenient- only 15 minutes away.. Forgive me…I called them Drivewise…it’s Drivewear. You may need to visit a local store and, I suppose that some of their stores don’t carry them. Here is a link to the manufacturer’s website:

        http://www.transitions.com/en-us/products/drivewear-transitions/

        This will give you all of the info you need.. I am SURE that other opticians also carry the product. They’re made by the same people that make regular Transition lenses…the difference being that they work in the car. I am fortunate to live in a large metropolitan area with availability to all of the goodies.(which also includes the largest and most famous eye specialty hospital in America).

        You can still send me an e-mail posting until 2/1…I’ll still be in e-mail range until then and will try to answer. After that we’ll be out of practical range….on a cruise to Central America. I keep my e-mail to a strict limit there as it costs a fortune!

        Whatever lens you pick for suns, make sure they are polarized….it’ll make even a bigger difference now that you have that crystal clear vision.

        My dear friend and across the road neighbor just told me he has developed a macular hole and is now beginning the year long trek that we’ve both experienced. He said it made him feel so much more fearless knowing that I had survived the ordeal. He’s got appointments with both of my docs next week so I have confidence that he is in good hands.

        It makes me feel good when I can impart some of my knowledge and good experiences onto others to dispel
        fears. So anything I can do to help you becomes my pleasure. You also mentioned that you had trepidations after the cataract surgery regarding taking your driver’s test.

        BTW—-I am a pilot and the FAA says I can still pass the test and keep my license! SO have no fear…driver’s license exam is a piece of cake.

        Be well.,

        Rick

    • Thank you for the info.
      I have also been getting my glasses at Costco. My last pair was in Nov. which was 4 months after previous pair (due to the progression of the cataract) so had to pay in full. I said I was going into surgery so they said I could have a free pair next time if within 6 Months. I must have been given the transitions signature as they turn brown outside but not behind-the-windshield and I see by the chart that they are not polarized. What I do not like about them is they seem too dark in overcast conditions so I will definitely get the drivewear. Wow, I never would have known about drivewear if it weren’t for you. Thank you.

      Which of the transitions did you choose for your indoor primary prescription glasses; the Signature, the Vantage, or the XTRActive? Did you consider the computer glasses?

      I have read your past postings and think it a mistake not to follow up with your retina specialist. I know in bright sunlight I am beginning to see wispy feint shadows in my good eye when I look at the blank sky. I know I have lattice degeneration. Also one of the risks of cataract surgery is detached retina. I went to my retina surgeon right after I noticed the wispy feint shadows in my good eye and he said everything was good. But if I had gone in immediately when I noticed the shadow in my bad left eye I may have avoided my retina’s large tear and could have just had a small tear lasiked in the office, instead of experiencing the horrible vitrectomy ordeal. Instead, I waited several days after I first saw the spider webby shadows because I knew I had an appt. coming up which would be in a few days. What I am saying is with a history of macular hole or detached retina, I think follow-up with the retina specialist is a good idea, because it could occur in the other eye and I believe it wise to have your retinas monitored on a regular basis; if you’ve had the history. I know that if I did not get the emergency vitrectomy when I did, the retina would have completely detached and I would be blind in that eye. An ounce of prevention is worth a pound of cure.

  2. Pleased to let you know that I achieved a full closure shortly after surgery. The bubble took a full 8 weeks to completely disappear…but when it did, all distortion in my vision was gone. I did however develop a cataract in that eye soon after (4 months to be exact. I had successful laser assisted surgery for the cataract and now…10 months since this horror show began, I have 20/25 vision in that eye (20/40 in other), I had a distance only lens implanted (the only choice after macular surgery) and am pleased to say that I can see PERFECTLY. I still wear my progressive glasses(need ’em to read) but I can drive without my glasses and the world is so much brighter. The head down positioning post-macular hole surgery was torture. But I made do with a TV monitor on the floor! The cataract surgery was actually a very pleasant experience (I’d almost say fun since it was so quickly satisfying). My opthalomologist (in whom I have explicit trust says I have no reason to return to the Retinal surgeon, Be patient….you’re past the worst part.

    • H,i my name is Carol. I’ve been myopic since childhood, thick glasses, hard contacts, soft contacts, then lasik at age 50 in 1999 corrected for monovision, my left eye being for near. Then in April 2014, I had a badly torn retina in my left eye and had a vitrectomy. I had membrane peeling, laser, photocoagulation, cryo, and an air bubble. I had to be face down for 17 days and it took forever for the bubble to go away. Thank God for audio books and rental equipment or I don’t know how I would have survived. I was worried when the bubble exploded into a universe of little dots and wondered if they would ever go away. Then I had the shimmering flickering and that was worrysome. I found this blog then and it was a lifesaver reading the stories, but I never joined then or posted.

      Now I am going into surgery for cataract removal (caused by the vitrectomy) and intraocular lens implantation. Because I’ve had lasik its hard to measure my eye correctly, but there is a more precise ora machine for use in the operating room after removing cataract and before putting in lens. I am still vascillating between monovision lens and multi lens. The dr. said he’s thinking 200 diopters, whatever that means for monovision: as retina patients aren’t the best candidates for multiple lenses. Even with this cataract I can still see 8 inches in front of my face and wonder if I am making the right decision.

      Has anyone experienced having lasik & vitrectomy and had an intraocular lens implanted that could shed light on which iol would be best? Carol

      • Carol…just a P.S. I was told that I was NOT a candidate for the multi-focal lens because of the vitrectomy. I’d get a second opinion before I’d opt for that.

      • Hi Carol…congrats on the 20/30 ! Blur should be gone in a day or so, My glasses (I’ll admit I might be a bit overboard!): 1 pair of single vision distance only (basically a window pane in the corrected eye for watching TV while lying on the couch; 1 pair (plus a backup) of new transitional progressives…minor distance correction in operated eye- regular distance prescription in other eye, both with +250 in the bottoms for reading; the progressive area(mid range) is perfect for computer monitor at three feet away; (3) same scrip in a pair of “Drivewise” sunglasses. Drivewise is a new sun color transitional lens…they go from a little dark in indoor light or overcast to darker in bright sunlight. Best thing is they go lighter/darker IN THE CAR…through the windshield. They’re GREAT ! Get all of my glasses at COSTCO…they’re HALF the price of everywhere else and their quality is great and any pair is returnable for 90 days NO QUESTIONS ASKED. Even if you just don’t like ’em. No pressure. The only downside, they take a week to make. Have gotten all of my glasses there for years.Soon you will wonder why you didn’t have the cataract earlier! On vacation beginning Friday for a month…incommunicado. Be well!

  3. Hi Belinda My name is Chelsea and I am a visually impaired photographer. I would love to chat with you. I don’t believe it matters what other people think. As long as you enjoy doing what you’re doing. You’re always going to run into people that think that you can’t do it because of your vision loss or lack of vision. Be strong believe in yourself and keep on going. I really enjoy meeting other blind or visually impaired photographers. I started a blog called Blind all around the world. And I’m always looking for more people to add to my blog. If you are interested in reading the blog or being a part of it here is the link. http://blindallaroundtheworld.blogspot.com
    Allso here is my personal blog which doubles as my website for now. You can always contact me using the contact form on this page. . I’m always open to at answering questions and chatting with people. Hope to hear from you soon Thank you Chelsea Stark
    http://chelseastarkcom.blogspot.com

  4. Hi Belinda…had the Jetrea in January…WORTHLESS! Followed with a PPV which closed the hole. Doc was pleased with the result. Quickly developed a cataract which I had removed (using a new laser procedure(Catalyst) last week. Sight is worse now than before I got started…but cataract surgeon says I can expect rapid improvement. Found out something interesting however…A macular hole is a CHRONIC ailment. The retinologists consider it a success when the hole is closed, but the macula never goes back to before the hole. I will NEVER have 20/20 eyesight in that eye again. I started (before the cataract surgery) at 20/200…I am(5 days post op) 20/80 and he says I can probably expect 20/40- 20/60. Macular hole “survivors” can never get a multi-focal lens so I will still need glasses to read. All in all, I probably would have thought twice before having the vitrectomy. My sight(except for the obvious distortion that the hole caused) was actually better before any treatment. Probably would have gotten worse, I suppose. But just getting the hole closed is NOT always a cause for celebration. However…the good news…I can see very well bilaterally so I suppose that is a measure of success. My new opthalomologist who did the laser cataract surgery was honest and straightforward. He told me I no longer have a need for the retinologist(for now anyway) and I cancelled my future follow up with him. I am upset that he NEVER told me that the macular damage was chronic…too anxious to sell me the Jetrea and the PPV surgery.My best advice to all is getting second, third and probably fourth opinions before you undergo a PPV. It is NOT a cure and may in fact become a complication.

  5. Hi Belinda!
    I really enjoyed reading your blog. For years I was my grandmother’s caregiver since she had a severe case of macular degeneration, scaring and bleeding–basically she was blind. This has created such an awarness and empathy towards this subject. Actually worldwide, 285 million people are visually impaired: 39 million are blind, and 246 have low vision. This is a substantial consumer segment that should not be ignored (only 7% of blind people can read Braille)!

    I am actually an Industrial design student now working on my senior capstone. I am designing a product for severely visually impaired and blind persons–currently in the research stage now! I would love to hear more about how you have dealt with your vision and even share with you some initial ideas I have just starting out!

    Best!
    Amanda

  6. Pingback: More Laughing Matters « Macular Degeneration and Me

  7. Hi, Belinda. Thank you for your great blog and the courage you show in sharing your experiences! Like many others, I’ve been myopic most of my life and am gradually losing ground. I’ve had retinal detachments in both eyes and also have Presumed Ocular Histoplasmosis, which has symptoms similar to wet macular degeneration and is treated the same way. Got to love the Avastin! With a newly-diagnosed cataract, there are days when I feel like my punch card should be full. 🙂 It is good to know that there are others who have been and will be walking the same path. Thanks, again!

    • Thank you so much for this blog….it has given me more practical information than my doctor!
      Had a vitrectomy 4 weeks ago to close close a macular hole. All in all, the surgery and the 3 days head down positioning went better than expected. I rigged up a 23″ monitor on the floor and connected it with an HDMI cable to my cable box. Having it there REALLY helped assuage the boredom which is the worst part of the head down regime. Between that and my tablet on a low coffee table I was able to survive the three days. I wear glasses and they are necessary for the “good eye”. However, through the “bubble” period, my operated eye distortion was not fully compensated by the good eye. I thus fashioned patches both for my regular and sun glasses for the operated eye (made out of, of all things, a medium sized “corn” pad that one uses on the toe. I found that with the operated eye resting, the good eye worked fine for my needs. I went back to work on my computer on the 4th post-surgical day and was allowed to drive beginning on that day as well.

      I was so appreciative of the little drawing I spotted on the blog with the illustration of how the bubble should appear and the little splitting off bubbles. I said…”hey…THAT’S ME!”. I’m down to what appears to be about a 50% bubble with fairly sharp sight above the bubble when I “test” it. Still having bi-lateral distortion so I survive with my glasses and the operated eye patched most of the day. I normally sleep on my stomach so that part of the recovery is not a burden. I do sorely miss NOT being able to flop on my back on the sofa to watch TV. A lazy-boy chair(upright) does suffice. The Dr. had promissed the shorter acting gas but diverted to the C3F8 @ 12% in the OR. So…I’ve got about six more weeks to go.

      btw…before surgery, I tried the drug option of Jetrea. They said it had a 35% chance of closing the hole without surgery. I was in the 65% where it didn’t and thus reverted to the surgery. There were no adverse side effects from Jetrea and the injection was a non-event.

      My biggest disappointment was in the follow up care of my surgeon. To say he showed a lack of interest would be an understatement. As a technician, he was excellent. His post-surgical personality was “how fast can I get out of this room”. He had 10 cases on the day of my surgery. My nickname for him is Dr. “Cut and Run”. Though I suppose I didn’t need the warm and fuzzy approach to bedside manner, it would have been reassuring to have him at least pretend to be interested. His announcement one week post op was that the hole was closed. When I asked him when I could expect to return to normal vision…his reply was …”Oh, it’ll be MONTHS” .

      From reading this blog, I have placed myself in the better than average recovery category compared to some of the notes I’ve read. And, once again, so many, many thanks to all of you for providing your personal experiences that have shown me that I am on the correct path so far.

      • Rick I know this post was months ago but wondered how you’re doing I too had a macular hole and tried the Jetria. Then surgery in June. The bubble was gone about a month ago, but now I gave cataract because of bubble,,my vision is not good by itself so good eye makes up for it..I keep reading of all the people that have had detached retinas and are struggling with issues, so guess I need to be grateful for what vision i have

      • Hey Rick, I so hope you are still following this blog. I had my macular hole surgery one week ago and I suppose I am doing well. I am so anxious to find out if the hole has actually closed, however, after looking at the ansler grid and other “tests” I have performed on what tiny area I can see out of over (under?) the bubble it looks as though there has been no change in my vision. Am I in too much of a rush….the bubble is beyond annoying and the head down positioning was agony for my neck, back and even my legs. I tried the “comfort” furniture offered on line and that was a total waste. My surgeon discontinued the face down regimen 5 days after surgery. The day after surgery I was examined and he told me the hole looked “nearly closed” so I was encouraged but now I don’t know what to think. I know it has been months since your surgery, so…..what result do you now enjoy after the months of recovery of which the surgeon spoke. Looking for realistic and honest encouragement. If you find the time to response I would be very appreciative. In any event you have my best wishes for a full sight recovery. Thanks for your blog.

  8. It does feel like a miracle to have found you five days before my cataract surgery. I too am married to a wonderful man named John, have wonderful kids, a Labrador named Chloe and a cat named Timmy Willie.
    Unlike you I have had perfect vision all my life. I am a photographer and professor, and now as I age the cataracts are making it increasingly difficult for me to see in the distance. It is dark grey, blurry. yet I can type this post on my iPad with ease. The type is a bit soft and I get a little headache but the idea of giving this vision up to see further feels like a terrible tradeoff. It makes me cry to think of it. I can’t believe I’m going to have this surgery. What if I am making a terrible mistake? Everything about it makes me freeze with fear. I am fascinated to read about your experiences and see how you faced your fear. You are SO brave. You are my hero Belinda.

  9. Greetings from Panama!!! I came to your blog supposedly by “accident” (I say so ’cause I believe God makes everything happen for a purpose) following a link at ezines articles.I was reading your article called “when God closes a door”. It was certainly a blessing for me to read it mostly because I’m having some issues in my life right now and I’ve been waiting for God to open doors in several areas in my life. But what was most incredible, is the fact that you too suffer from a deteriorating low vision condition. I’ve been suffering Kerataconus almost my whole life. It’s a deteriorating corneal condition that makes your life unbearable sometimes (mostly If one have faced problems to afford proper treatment in the past :/) But I’m happy to say I’ve found comfort in God’s arms as I’m trying to keep my life as normal as I can. And he have even opened some doors for me to treat my health condition and in my life in general too. Anyways, I just wanted to tell you that I’ve found encouragement and inspiration in your own history, while I keep on trusting in the Lord for the rest.
    I’m looking forward to read more in your blog. Thank you and may God continues blessing you and your beloved ones.
    Kind Regards, Jussy 🙂
    p.s sorry for the long post and grammatical horrors xD (I’m not a native speaker as you may see hehe)

    • Hello and welcome to my blog! I am so glad that you came across this blog through ezines and that you found my posts encouraging. I am not very familiar with Kerataconus but I believe that all of us with vision loss can support, inspire, and love each other. Thanks so much for your comment and I hope you will visit again.

  10. Mary & I first met you & John thru Marriage Encounter, later in my short stint with diaconate discernment.
    Recently my mother moved to an assisted living center. I acquired her Alladin Ultra Pro 75 magnification unit, which helped during the early stages of her macular degeneration. It has remarkable magnification clarity, and I considered giving it to my colleagues at the State Police for latent fingerprint exams. Reading your blogs makes me offer it to you instead. I work in the city and can deliver it anywhere, anytime. No charge, other than the promise that, if it doesn’t help you personally, you find someone (through ABVI?) who truly needs and would benefit from it. It’s too nice a unit to have waiting for me to need a sliver removed from my finger, or studying a twenty dollar bill!

    • Thank you so much, Marty, for everything – for reading my blog, for commenting, for your kind offer. I did also reply to you by email. I am so grateful that you thought of me for the magnifier. It will make things a lot easier at home. I hope your mother has a smooth transition to the assited living center and I hope you and Mary are well. Peace, Belinda

  11. wow!!! I am a new follower to your blog. I too suffer from deteriorating eye sight and am finding the bologging world a source of great inspiration. Thanks for sharing yourself with the world

    • Hi Sarah and welcome! I am so happy that you found my blog and enjoyed it and took the time to post a comment. I hope that you find it helpful and will visit often. Thank you.

  12. I was just led to your blog by lovely Pam who posts on the MD forum. I feel like I am reading about myself! I was diagnosed with myopic macular degeneration six years ago and have had a slow decline since then. I have been fortunate to have periods of stability where I almost forgot I have a problem. But this summer, the decline has taken a slide down an ugly slope. I don’t know anyone in my life who has vision loss so I am thrilled to find your blog. Thank you.

    • Hi Gen! I am glad that Pam told you about my blog and that you find it helpful. I am always glad to find companions for this journey into low vision living. I am sorry that you are experiencing a slide farther down the slope toward low vision. Hopefully, being on the journey together will help both of us to find grace in this situation. I hope that you will continue to comment on posts. Thank you for reading my blog and for your comment.

    • Belinda and Gene,
      When I read your stories, I too feel like I am reading about myself. I have also had to wear glasses since I was 8, while in my early 30’s I had lasik, after a few years I noticed a change in my eyesight. Lat Summer I was attending a workshop and realized that I couldn’t read the whiteboards or read the handouts even with glasses. This was when I was officially diagnosed low vision with CRD (Cone Rod Dystrophy). These last few months have been very challenging. I am happy to have been told about your blog.

      • I am happy that you found my blog. Thank you for the comment. I hope that you continue to read my blog and that you will share your story and add your words to other posts.

  13. My favorite quote comes from one of my favorite persons – Helen Keller

    Helen was asked “what could be worse than being blind” and her response was

    “to have site but no vision!” Your site may be limited but you have great vision!! Thank you for sharing this blog and your vision!
    Peace, Deb

  14. Belinda,
    Once again, you inspire me! Thank you for sharing yourself so deeply with the world, and with me.
    Love, Sheri

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